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Anita Bogusz, 45, who lives in Wednesbury in the West Midlands, noticed Amelia was not well in October last year when she started getting headaches. She also became sensitive to light and loud noise.
A few days later, Amelia developed double vision. She was rushed to Birmingham Children’s Hospital for a CT scan.
It revealed the youngster had a large, craniopharyngioma brain tumour.
These are non-cancerous brain tumours which can affect children and adults, usually growing near the base of the brain, just above the pituitary gland, according to Cancer Research UK.
Mrs Bogusz says the tumour has left Amelia unable to walk and in need of constant care. She is hoping to raise £100,000 to take her daughter to other hospitals in Europe to receive alternative help.
She said: “Amelia is so sad now. It breaks my heart and I just want to try to get her better.”
Mrs Bogusz explained how she and her daughter were visiting family in Poland in August last year when Amelia looked tired all the time and felt unhappy.
Mrs Boguz said: “She was usually active, so it was unlike her – she stopped doing everything.
“She started a new school when we returned to the UK and the teachers would call me all the time to pick her up because she had a headache.
After the devastating diagnosis, Amelia underwent eight operations and has had multiple sessions of radiotherapy.
She developed a number of infections while damage to her brain from the tumour caused her to lose mobility in her left side. She lost the sight in her right eye, suffered lung infections and requires a machine to help her breathe, Mrs Bogusz said.
She added: “She seemed to have a thousand infections and needed so many antibiotics.
“After her first operation, she developed clots and her brain swelled and she can no longer move very easily.”
Amelia has NHS physiotherapy every two weeks but mum believes it isn’t enough so the family is trying to raise money for private help.
On her fundraising page, Amelia is described as “one of the bravest 12-year-old girls you can imagine, full of love for people, animals and the world”.
“Everyone who has met her has loved her and knows what a unique being she is,” it adds.
Visit GoFundMe to donate.
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